Post #331,942
8/27/10 3:53:16 PM
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Slant topic
While I have no experiential basis upon which to rest a comment on the rest of the story, I can speak to one bit.
Fibromyalgia is a bullshit garbage can diagnosis that doctors give you when they don't know what really ails you. It means you don't have MS, or a brain tumor, or ALS, or B12 deficiency, or Lyme's, or lupus, or diabetes, or any of a number of other nasty kill-you-daid maladies. Such a diagnosis does not, however, mean that you don't actually have anything wrong with you.
In my case "fibromyalgia" was a misdiagnosis of "seizure disorder and concomitant mid-grade sleep disruption". "Allergic to work" was not part of the differential, I assure you.
In any case, none of this is germane to whatever SWT may have been up to. You just flipped a sore bit with me, that's all.
Regards, -scott Welcome to Rivendell, Mr. Anderson.
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Post #331,943
8/27/10 3:56:00 PM
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Does that mean they can fix you now?
--
Drew
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Post #331,945
8/27/10 4:32:04 PM
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Still working on it.
Prognosis is either very good or not at all, most likely.
Regards, -scott Welcome to Rivendell, Mr. Anderson.
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Post #331,959
8/27/10 9:03:57 PM
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My observation...
And I've worked with lots of people who said "fibromyalgia", often with a doctor's note. One of my clients is a doctor diagnosed with fibromyalgia, who has informed me there is no such thing.
There is something going on in a lot of these cases. The tissue just ain't right, in one of about three different ways that I don't have the vocabulary to explain.*
And some of them are probably just allergic to work.
But most of the time, there is something going on. I don't know what it is, what causes it, if there is a cure, anything except 1) there is something wrong and 2) I can usually help.
My guess is that there are several conditions that get the same name. And I kind of suspect, based on how the tissue feels and the concurrent epidemics, that at least one kind of it is a diabetes-type metabolic problem.
But in practice, none of this matters to me. I don't diagnose anything** and I treat the person not the condition, so the diagnosis they come in with may be a handy clue but it isn't really important to me.
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* OK, I'll try...
1) Icky-squishy
2) Tight hard strings running through mush
3) Rock where there ought to be flesh. I'm talking fat that feels harder than bone. You can't poke into these people anywhere.
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** License issue. I'm not allowed to diagnose ANYTHING. For my research project, I worked with blood pressure. I checked - I am allowed to tell you "your blood pressure is x/y" but I can't say "you have high blood pressure". If you happen to see the flashing red light on my machine or read the chart printed on the side, well, that's not my fault.
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I think it's perfectly clear we're in the wrong band.
(Tori Amos)
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Post #331,962
8/27/10 9:09:23 PM
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you could be describing lupus as well
Any opinions expressed by me are mine alone, posted from my home computer, on my own time as a free American and do not reflect the opinions of any person or company that I have had professional relations with in the past 55 years. meep
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Post #331,995
8/28/10 1:39:35 PM
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Yes, I had that as well.
I get body work done every two weeks, and for the first few years I had issues like that.
I fixed the "cables in mush" and "hard as bone knots" problems with kettle bells and yoga. Nothing else had ever worked.
There's something exercise does that helps the entire body achieve proper muscle tone, not just the muscles being exercised. I haven't had the time to properly exercise for a while and I'm starting to notice the problems again: tight, extraordinarily hard knots in odd places, muscle cramps and pains in my chest and neck, and so on.
Regards, -scott Welcome to Rivendell, Mr. Anderson.
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Post #331,996
8/28/10 1:59:35 PM
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More please.
J has had tight muscles for years, and they got worse after an accident in January. She's now going through issues with tingling and numbness in her hands and arms (that are not carpal tunnel). She's been to all kinds of physicians and physical therapy (some of which made it worse). For the last few months she's been seeing a new massage therapist who is working on her rock-like knots in her shoulders, back and legs - http://www.oldtownma...ter.com/home.html (The particular person also works on patients at Walter Reed - she's done wonders for J.)
Anyway, J and her twin sister have similar issues but they haven't found a good way to make the knots go away more than temporarily. J's sister was told by her massage person about issues with her scalene muscles, but none of the physicians that J has talked to here seem to think the tingling is related to muscular issues. At one of her last PT sessions the therapist had her working with resistance bands that made her worse and caused lots of additional pain. Both of them have old bulging disc issues in their necks, things that the physicians are convinced are causing problems, but their main problems seem to be muscular.
How has kettlebell and yoga helped? Any good pointers to links that you can share?
Thanks.
Cheers,
Scott.
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Post #331,997
8/28/10 3:02:47 PM
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Re: More please.
If they have disk problems kettlebells may not be the fix. I'm far from an expert though. They don't bother my back.
At any rate, I started doing about a half hour of various kettlebell exercises along with yoga and other Wii Fit exercises 3 times a week. After a few months of this the massage therapists were noticing obvious improvements in muscle tone, and the ropes and knots went away.
Tingling and numbness can definitely be related to tight and knotted muscle issues. Nerves pass through muscle on their way down to the fingers.
Regards, -scott Welcome to Rivendell, Mr. Anderson.
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Post #332,006
8/28/10 9:17:09 PM
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Thanks.
In J's session today, the massage therapist worked on her jaw muscles again for a few minutes. They talked about the tightness. J was treated for TMJ a while ago (including braces - http://en.wikipedia....ar_joint_disorder ) and had some dental work done in January right around the time of the accident. Apparently her latest crown isn't quite right still, so J is thinking that that may be part of the latest muscle issue as well. Her sister recalled that her finger tingling issues started after she had some dental work done too...
It's amazing how everything's connected to everything else.
I'm glad the massage is helping her. She'll be bringing things up with her dentist again soon. Fingers crossed.
Cheers,
Scott.
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Post #332,008
8/28/10 9:45:16 PM
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I had some of that too.
All of my issues seem to be interrelated.
Regards, -scott Welcome to Rivendell, Mr. Anderson.
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Post #332,015
8/29/10 12:21:09 AM
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re 'dental' nexus of complaints
A friend experienced several odd symptoms over ~10 years; nothing like 'causality' could be found amidst a gaggle of alleged Pros. Turned out (discovered last year) that an earlier root-canal on her, BI-cuspid was billed and 'done' on one root only. A sub rosa infection seemed to strike sinuses and elsewhere on body.
(Legal gymnastics pending..)
Similarly re, say one tooth whose exact bite-height is screwed up, either in elevation or, say poor 'anatomy' (the coruscations custom-sculpted into each biting surface by a hopefully ept *tech) can do quirky things not only to jaw muscles but quite beyond the mouth. ie inept dentistry can catalyze a lplethora of vague symptoms. Werd, from a (Real) Pro. See below.
* in ancient times, dentists did their own casting, were graded punctiliously on all the above facets.
Mostly now, these designs of both art and science are farmed out, for all reasons of that manic hurriedness which perfuses every activity in MarketMurica. (Koan -- the hurrier I go the behinder I get)
(I was fortunate to have an acquaintance just starting his clinical work at UCSF; he turned out to be A+ material -- was asked to return and teach, after grad, etc.
His apparent innate skills + the time-consuming floor checks by profs. got me an unusually correct also durable set of restorations, inexpensively via 'student', yet.
(And that time, waiting for 'approval' ... got me a pretty incisive factoid course in the whole matter -- useful ever since.)
In >35 years [!!] one cement surface loosened; a mere re-gluing solved that.
Part of a molar cracked near a crown, requiring the first new casting work, a couple years back.
Local dentist recently concurred re quality, himself remarking about the mentioned 'anatomy' shapes and execution of Dr. B: '"no ... you Can't get that level of work now ..."
Lucky moi ... synchronicity, I guess. Dr. B ended up practicing in the academic ghetto in Berkeley hills.. near moi. This at the beginning of small computers.
I recall 'testing' his mondo expensive NEC 'Sellum One model?' daisywheel printer on my Osborne1 via WordStar natch -- inserting lots of sub- super- scripts as for nuclide descriptions, marveling at the speed and the Cost! (maybe 4x the Osborne?)
Ah.. everything was New, back then. And 58K was enough to create a bitchin WP, especially for touch-typists.
And yes, I am aware that my dental experience is as an extreme outlier -- this also despite, early-on (at boarding school) young-dumbth that created the many amalgam-filled 'cavities' which were fully corrected.
I continue to be amazed at the fussless durability of that work, done Once. Right. :-)
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Post #332,023
8/29/10 9:43:17 AM
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You're a lucky man! Thanks.
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Post #331,964
8/27/10 9:43:02 PM
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Re: Slant topic
While I claim neither allegiance to allopathic medicine's facility for concocting names of 'diseases', nor any fondness for the fact that practitioners hardly-ever 'cure' anything ... as they treat all the symptom$ forever after:
Am acquainted with a person suffering from Lyme disease, an intelligent and diligent researcher of the usual sources (re a personal affliction) and with no hypochondria tendencies or related character 'tells'.
She acquired the odd symptoms which intruded increasingly into her life, and sought treatment.
At that time, Kaiser (for one) had no knowledge of the 'disease' and blew her off entirely, refusing to 'treat' this 'imaginary illness'
(Unclear to me just now if 'Lyme" had even entered the weekly lexicon, at that juncture.)
aka: they willingly ignored the overt signs of debilitation, etc. It hadn't made it into the PDR yet, ergo she must be a nutcase.
Your disease MUST be listed or.. you're OK ?!? [ONE]
She finally found, via a friend, a Univ. med researcher who knew her symptoms were not BS, etc.
It was he who got her the Rx for a promising bit of alchemy. Etc. At her expense, natch.
Perhaps fibromyalgia is at a similar phase, thus bearing ridicule for the imprecision and ignorance of those who 'profess' to know.
Find one overt faker and gossip will do the rest, I wot. And when bean-counters enter the act in our for-big-profit med empire:
can we not expect these early dismissals? It only makes good bottom-line $sense.
My 2.5 kopeks
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Post #331,965
8/27/10 9:58:15 PM
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No disease exists until there's a drug for it
--
Drew
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