IWETHEY v. 0.3.0 | TODO
1,095 registered users | 1 active user | 0 LpH | Statistics
Login | Create New User
IWETHEY Banner

Welcome to IWETHEY!

New Okay, here's the Dr report.
I braved the ice today in my car to keep my appointment with the dr. (Only slid around a little. ;) Hehe).

Anyway, I talked to him at length and told him everything that has been going on with me since June (the family reunion), and I asked him if maybe we needed to do more with my anxiety medication or have me see someone in a therapy sense. I told him everything, about the blackouts, the funeral, John's car accident, etc. I also explained that nothing had slowed down since the reunion, that we hadn't had one month or a couple weeks go by without something new, bad or extreme happening to our family.

He agreed and said just the two blackout situations alone are pretty extreme and not usual for our city. But he told me that when he looked at me, he didn't see someone in front of him that was falling apart. He said he saw someone who was coping quite well, despite feeling like I was falling apart. He said he was very proud of me, for facing all my fears during all these major crisises like the blackouts and the funeral, and that I was really doing remarkably well!

I said, well I feel like I'm falling apart sometimes, and he told me that is ok to feel, but it is because II'm still afraid to trust my own judgement. But he told me, I do have good judgement. I said that was what my counselor said to me too, when he told me I was done with therapy. He said you know what to do now to counter and handle your anxiety, you have all the tools you need to use, but you have to do it. No one else can make you. So my doctor gave me an analogy today. He said exactly. It's like learning to whistle. We can tell you everything about how to whistle, but YOU have to be the one to achieve it, we can't whistle for you.

So he concluded that I don't need further therapy at this time, nor do I need more medication. We talked about the spasms and how they lasted 3 weeks after the funeral, and now I know that in a situation like that again, I should take more than one dose a couple nights apart. He wasn't even upset about the bronchitis, because he understood the spasms masked it. I'm still learning from all the experiences, and he was proud to hear that.

He told me to use my support system (here, John, my RL friends, other online groups, etc), to help me when I'm confused about something, He was proud of me for posting in here about my state of mind and being open to Another Scott's suggestion that maybe it was more about taking care of mom and dad than the fact that dad's sister died. He told me to use that support system when I need a little guidance or encouragement, (which is what you all provided here), but ultimately, I have to trust myself and be confident in my own decisions, and no one can make that happen except me.

And unfortunately, mom questions every move I make, which my dr said makes it harder. But for example, today, she wanted me to cancel this dr appointment due to the ice and stay home and safe and not drive. But I wouldn't have been able to see him for another month or more, so I decided to go. Mom was upset about it, but I faced my fear and went. And that, he told me was a sound decision, because I dealt with the anxiety and drove anyway. Plus I told mom, she wasn't fair. She gets mad when I try something scary or possibly risky, but yet she is embarassed if I can't do something seemingly simple like drive on ice or drive alone to Illinois. So mom admitted she had a hard time resolving those two fears and grudgingly admitted she was proud of me for going and succeeding. Wow, PROGRESS!

I'm my own worst enemy, because I doubt myself the minute someone questions my decision making, especially mom. Guess I should start working harder on learning how to "whistle" ;)

Anyway, that's the way the dr appointment went. And I want to add, that the soundboarding is a tool all my therapists told me to use. It isn't really a substitute for actual therapy, I even used it during actual therapy. What it's designed to do is to pour out your thoughts somewhere to help me see other avenues to try, or to help me come to a hidden understanding of some fear or doubt when I'm too confused by everything going on to be sure. I had no clue my fears were based on future worry about taking care of my parents, and I appreciate Scott helping me see that. Since then, I've talked to my family about this, and if mom and dad were to need such care, it would not all fall on me. That was a huge relief and eased a lot of the stress. Thanks, Scott!

One more thing and I'll shush. ;) My doctor was so so proud of me for coping with all this as well as I have. He was amazed I haven't had one ambulance ride or one Grand Mal Attack this year, and he told me he has complete confidence in my ability to get through this family crisis state and back to some semblance of normal. He said that since I only have what's called "situational panic anxiety" instead of the actual "Panic Anxiety Disorder", that is what gives me the strength and confidence to face my fears rather than hide at home and never try anything scary or face anything that makes me anxious. Some people have panic anxiety so bad they won't leave their homes! Wow, I can't imagine that.

He also said that it only appears that the smaller things cause me extreme anxiety right now (such as mom being upset that her Thank You cards I was supposed to help with weren't out yet), but it's really just that there's so many larger things causing all that anxiety that one more smaller thing is simply one more thing too many. That's when he tells me to vent online, to someone, to anyone, whatever helps to get some of my thoughts straight, verbalized, and in order. And I did, and it worked. :)

So instead of feeling like I haven't been coping very well, I'm supposed to try and be proud of myself (which is hard for me) at how much I've accomplished and how many fears I've faced this year. And he told me no one can make me believe and have confidence in myself except myself, no matter what they do.

So thanks for all your support, and it's nice to be able to come here and vent when I feel like it's not a good idea in other locales online. And I really do appreciate all your advice and soundboarding help. :)

Brenda

Edit: I changed Grand Mal Seizure to Grand Mal Attack to differentiate it more from epilepsy. Sorry for the mistake.



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
Expand Edited by Nightowl Dec. 5, 2006, 01:01:48 PM EST
New grand mal ?
as in epilepsy? So these "anxiety" attacks could be very petites? Well it sounds like you have 2 feet on the ground and by the conversations that swirl about me at work you are reasonably normal, even outside of St Louis
thanx,
bill
Any opinions expressed by me are mine alone, posted from my home computer, on my own time as a free american and do not reflect the opinions of any person or company that I have had professional relations with in the past 50 years. meep
New Re: grand mal ?
as in epilepsy? So these "anxiety" attacks could be very petites? Well it sounds like you have 2 feet on the ground and by the conversations that swirl about me at work you are reasonably normal, even outside of St Louis


No, not exactly. I don't know what very petites means, but I know Grand Mal normally makes people think of epilesy, but I don't have that. What is sometimes loosely termed as a "Grand Mal Panic Attack" (probably for lack of a better word), is when a person hyperventilates and shakes so badly that they fall on the floor gasping and writhing and usually a paramedic is called. (Although John got me out of one of those once in our house, by managing to hold me and calm me down and get me to breathe).

I've only dhad one of those a few times in my life, usually when I get a sudden shock like being fired from somewhere, or when a friend of mine lied to the police about me and I was so shocked I had one.

I haven't had one of those in over a year, and normally now I can prevent it from becoming that bad in normal situations. Also, most people I will ever be around, (including any employers), are informed what they need to do when/if it ever happens, so I am rarely in a place where someone can't help. I also plan to put an emergency card stating "I'm having a panic attack, please help me to calm down and breathe" with emergency phone numbers in my fanny pack and car, so that I can hand it to a stranger, rather than gasping out the words between breaths like I did the morning of the funeral.

When I feel panic coming on while driving, I stop the car in the first safe place, and I've never had a full attack while driving so far.

Box you're right though, I've become pretty grounded these days, and I also have come a long long way since being diagnosed with this situational panic anxiety in 1984. I haven't had an ambulance ride or an attack I was unable to stop with help since 1996. :)

Thanks for the encouragement!

Brenda





"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
New oops, I should have written attack, not seizure
Yikes, sorry...I reread my post and realized that I actually wrote the word seizure instead of attack.

I don't kow what else to call it I guess, because when I fall or collapse during an attack, I tremble all over, and shake my head and arms from side to side, (I can hit my head on things if not stopped), gasp for breath and usually also experience panic hysteria at the same time which is a sort of screaming rhythmically for breath. The only other term I've heard used for it is a "complete or full panic attack" which doesn't describe it much, in my view.

But I should have written the word attack, not seizure. Sorry, it was late and I was not thinking clearly.

Brenda



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
New Grand Mal is not used to describe panic attacks
[link|http://www.nlm.nih.gov/medlineplus/ency/article/000695.htm|http://www.nlm.nih.g...rticle/000695.htm]
[link|http://www.mayoclinic.com/health/grand-mal-seizure/DS00222|http://www.mayoclini...l-seizure/DS00222]
[link|http://en.wikipedia.org/wiki/Tonic-clonic_seizure|http://en.wikipedia....ic-clonic_seizure]

I have a friend who is epileptic, and he has grand mal seizures. It's not all that rare.

There are a couple of inaccuracies in your description. Firstly, people don't fall down because they're shaking; they fall down because they're unconscious. Secondly, you don't need to call a paramedic; all you do is make sure the person is clear of anything they might hurt themselves with (furniture, etc) and leave them to it.

You would call a doctor if the person went into status epilepticus, which is the dangerous state where one seizure leads to another and another. This places great stress on the body and brain and needs to be controlled, usually by immediate and heavy sedation.

Panic attacks are just that. Not to belittle the unpleasant nature of them, but what you describe is simply a panic attack, not a grand mal seizure.

The other thing to note with full-on grand mal (or as the literature calls them these days, tonic-clonic) seizures is that they can be very distressing for bystanders to witness. The person having the seizure remembers nothing.


Peter
[link|http://www.no2id.net/|Don't Let The Terrorists Win]
[link|http://www.kuro5hin.org|There is no K5 Cabal]
[link|http://guildenstern.dyndns.org|Home]
Use P2P for legitimate purposes!
[link|http://kevan.org/brain.cgi?pwhysall|A better terminal emulator]
[link|http://darwinia.co.uk/|[image|http://i66.photobucket.com/albums/h262/pwhysall/Misc/saveus.png|0|Darwinia||]]
New You are right, not as an official term.
I have a friend who is epileptic, and he has grand mal seizures. It's not all that rare.


I know, that's why I said some therapists and patients use the term loosely, because of some of the similarities, it's not an actual medical term for it.

There are a couple of inaccuracies in your description. Firstly, people don't fall down because they're shaking; they fall down because they're unconscious. Secondly, you don't need to call a paramedic; all you do is make sure the person is clear of anything they might hurt themselves with (furniture, etc) and leave them to it.


Well, I also fall down when shaking too much, because my legs won't are shaking so bad they can't hold me up. I also have gone into unconsciousness, you are correct, I can faint, or pass out so to speak in a full attack.

I know the paramedics don't need to be called, as do all my friends and family who know about my situation. However, when someone starts shaking and gasping and falls down unconscious, the average bystander's first move is to call an ambulance, which was what happened in the earlier years when I was unable to explain not to do that, and before I was educated enough myself.

And in my case, you don't really leave me to spasm all over the place, even if I am being prevented from hurting myself, because I've taught people how to get me to calm down, rather than going to the point of fainting. But yes, if no one is there to help, I simply go through it. You can't die from just a panic attack, although the person often believes they can because they are panicked and it's very scary, unless you fall on something and hurt yourself seriously, crash a car, etc.

You would call a doctor if the person went into status epilepticus, which is the dangerous state where one seizure leads to another and another. This places great stress on the body and brain and needs to be controlled, usually by immediate and heavy sedation.


That doesn't happen with me, once it's over, it's over, and then I need the Xanax to more or less reset all my stress levels.

Panic attacks are just that. Not to belittle the unpleasant nature of them, but what you describe is simply a panic attack, not a grand mal seizure.


I admit that, and I said seizure when I meant to say attack. Like I said, it's an informal way of the patient describing it in therapy, not a professional manner to term it by. Sorry for the confusion. I think it started by other people who didn't understand it, describing it in that manner for lack of anything else to compare it to.

The other thing to note with full-on grand mal (or as the literature calls them these days, tonic-clonic) seizures is that they can be very distressing for bystanders to witness. The person having the seizure remembers nothing.


Believe me, when people first see me have a full complete attack it is VERY scary and distressing to them. And I remember very little in a full on attack, hardly anything, to be honest. But I've scared people to death by writhing, screaming and gasping on the floor, so I try to avoid it from happening as much as possible when I can.

Brenda



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
Expand Edited by Nightowl Dec. 5, 2006, 02:31:04 PM EST
New You're still not having grand mal anythings.
You're having severe panic attacks.

Confusing the two could have bad outcomes for you if you're incapacitated and medication is required.


Peter
[link|http://www.no2id.net/|Don't Let The Terrorists Win]
[link|http://www.kuro5hin.org|There is no K5 Cabal]
[link|http://guildenstern.dyndns.org|Home]
Use P2P for legitimate purposes!
[link|http://kevan.org/brain.cgi?pwhysall|A better terminal emulator]
[link|http://darwinia.co.uk/|[image|http://i66.photobucket.com/albums/h262/pwhysall/Misc/saveus.png|0|Darwinia||]]
New Correct.
You're having severe panic attacks.


Confusing the two could have bad outcomes for you if you're incapacitated and medication is required.


You're exactly right, so I never call it that when having one, it's just called a panic attack. I only ever used the term in therapy, for the most part, to describe the severity of it so I just fell into habit when describing it.

In the future I'll do my best to call it a full-on panic or complete panic attack.

Thanks!

Brenda



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
New If you're epileptic, you need to stop driving NOW.
If you have a petit mal seizure at the wheel, you're going to come a real cropper.

Also, if you'd had a grand mal seizure, you might not know anything about it, but everyone around you would.


Peter
[link|http://www.no2id.net/|Don't Let The Terrorists Win]
[link|http://www.kuro5hin.org|There is no K5 Cabal]
[link|http://guildenstern.dyndns.org|Home]
Use P2P for legitimate purposes!
[link|http://kevan.org/brain.cgi?pwhysall|A better terminal emulator]
[link|http://darwinia.co.uk/|[image|http://i66.photobucket.com/albums/h262/pwhysall/Misc/saveus.png|0|Darwinia||]]
New no, thats what dilantin is for
she can certainly recognise the onset and pull over and stop.
thanx,
bill
Any opinions expressed by me are mine alone, posted from my home computer, on my own time as a free american and do not reflect the opinions of any person or company that I have had professional relations with in the past 50 years. meep
New Well, in the UK that's not an option
You get diagnosed as epileptic, you're immediately disqualified from driving.

And even with medication, seizures can come on without warning.


Peter
[link|http://www.no2id.net/|Don't Let The Terrorists Win]
[link|http://www.kuro5hin.org|There is no K5 Cabal]
[link|http://guildenstern.dyndns.org|Home]
Use P2P for legitimate purposes!
[link|http://kevan.org/brain.cgi?pwhysall|A better terminal emulator]
[link|http://darwinia.co.uk/|[image|http://i66.photobucket.com/albums/h262/pwhysall/Misc/saveus.png|0|Darwinia||]]
New Re: no, thats what dilantin is for
she can certainly recognise the onset and pull over and stop.


Actually, that's what happens with Panic Anxiety too, I feel my heart start to race, the shaking start, my breathing quicken, or my skin flushing, which are all signs of an onset, and I pull over at the first safe place.

I take Xanax, but only when I'm not having to be functional. Half a pill of Xanax, 0.5mg knocks me out and I sleep about 10 hours. An entire one, (which I almost never take unless I have a "grand mal" attack, knocks me out for almost 20 or so. So I only take the Xanax to stop the building up of anxiety, (in other words to offset the internal build up), and only when I can sleep it off in the morning.

We've yet to find much medication that works while I'm active for me, as I'm very weird with medication, 9 out of 10 kinds won't do what they are supposed to do for me, or do the opposite. So I've spent years and years in therapy (started therapy in high school even before this was diagnosed), learning all the non-medicated tools like slowing my breathing, stilling the shaking, how to catch it coming on, etc. Sometimes there's is no option but to knock me out with the Xanax if it can't be stopped by other means. But like I said, that last happened in 1996, and the paramedics were called. (That was before I knew John). :) So I guess that's major progress to be proud of!

Brenda



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
New It's not really epilectic...
The term is also loosely used by doctors, patients and therapists to describe a complete panic attack (I just explained it all in my reply to Boxely).

And the words panic attack are always included, as in "Grand Mal Panic Attack" not the word "seizure."

I was unable to drive much when I was first diagnosed because I didn't have all the tools in place to know how to breathe and calm down and stop shaking if I got panicked, but now I have a pretty good handle on all that as the morning of the funeral, surprisingly proved to me. :)

Don't worry Peter, it only seriously affects people's ability to drive if part of the things that causes their anxiety is driving itself, and that's not the case with me. :)

Brenda



"When you take charge of your life, there is no longer need to ask permission of other people or society at large. When you ask permission, you give someone veto power over your life." -- By Geoffrey F. Abert
****************************

"Be who you are and say what you feel, because those who mind, don't matter - and those who matter, don't mind." -- By Dr. Seuss
***********************************

"Sometimes it takes a whole lot more strength to walk away than to stand there and fight." -- By the character of John Abbott: said on Young & Restless on 5/19/06
*********************************
New Well I hope you get better
I recall my car accident, and Uncle Buddie's funeral that I missed because I had gotten hurt. I have a history of blackouts and panic attacks myself. I was also thought to have Asperger Syndrome, but it is actually schizoid personality disorder which I am learning more about and it explains my actions online and in real life. I just cannot get social clues and have good relationships, and I stay at home most of the time and don't get out much. I feel like an observer rather than a participant, and I do feel sorry for all the bad things I've done, but I cannot change the past.

What I did figure out, and maybe it will help you, is that I learned how to be a survivor rather than a victim. That I cannot change others, but maybe I can change myself and the way I react to things. That maybe I can survive my mental and physical illnesses and make some improvements. That maybe I have to give up trying to join online communities until I can get my mind straighted out and stop doing those annoying things that upset everyone. I don't expect to be very active here. I don't expect anyone here to forgive me and become my friend again. I just expect to maybe change myself enough so that I can bring peace of mind and goodwill instead of being an Internet troll and bring about annoyance and bad things.

Anyway good luck to you and everyone else here. Happy Holidays and Happy New Year.



"It is of interest to note that while some dolphins are reported to have learned English -- up to fifty words used in correct context -- no human being has been reported to have learned dolphinese."
Carl Sagan (1934 - 1996)




[link|http://district268.xormad.com|I am from District 268].
     Okay, here's the Dr report. - (Nightowl) - (13)
         grand mal ? - (boxley) - (6)
             Re: grand mal ? - (Nightowl) - (5)
                 oops, I should have written attack, not seizure - (Nightowl)
                 Grand Mal is not used to describe panic attacks - (pwhysall) - (3)
                     You are right, not as an official term. - (Nightowl) - (2)
                         You're still not having grand mal anythings. - (pwhysall) - (1)
                             Correct. - (Nightowl)
         If you're epileptic, you need to stop driving NOW. - (pwhysall) - (4)
             no, thats what dilantin is for - (boxley) - (2)
                 Well, in the UK that's not an option - (pwhysall)
                 Re: no, thats what dilantin is for - (Nightowl)
             It's not really epilectic... - (Nightowl)
         Well I hope you get better - (orion)

Truly you are Earth's greatest customer.
62 ms